Killing Mother: Progressive Supranuclear Palsy

Progressive Supranuclear Palsy


Progressive Supranuclear Palsy is a rare brain disease affecting only a few thousand people in the U.S. each year; yet, the trajectory of the illness compares with other terminal or degenerative diseases in its overwhelming challenges and everyday triumphs. Killing Mother, one family’s story of coping with this grim disease, narrates a universal struggle as it paints a loving portrait of an ordinary woman on her unique journey toward the only certain ending.

Being a caregiver for a parent can be full of contradiction, devastating and uplifting at the same time. Writing by turns with tenderness, frustration, and humor, the author chronicles in riveting detail the last year of her mother’s life with PSP. Observation and insight blend with revealing dialogue and helpful tips to weave a compelling memoir of profound personal breakthroughs in the face of imminent death. For patients and caregivers alike, this book is sure to encourage reflection, inspire forgiveness, and guide them on their own journeys to find support, clarity, and compassion during a deeply difficult transition.

PSP is a multi-system atrophy disease, with symptoms and characteristics that resemble some other more common degenerative diseases such as ALS, Alzheimer’s, and Parkinson’s. Each of these diseases has its own set of distressing symptoms, and each patient’s experience and timeline with each disease is unique. But the struggles that patients and caregivers face, and their coping strategies, can be surprisingly similar with any terminal disease. Killing Mother speaks to anyone setting out on the life-changing exploration of a degenerative disease.

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